Welcome to my first roundup with additional pictures (when I have them), website links and all my witty banter (*snicker*) all in one convenient place!!
Saturday/Sunday
Monday
(Morning)
My 9 year old with some serious anxiety issues has a well child visit this morning. This could go one of two ways but the likelihood of it end on the better of the two is pretty minimal. We did blood work for a titer check last week and that ranked in the top 10 worst ASD experiences of my life, it wasn't his first blood draws but it certainly was the most difficult. I'm pretty confident that his titers will show strong enough immunity to avoid any shots today, if they don't there will still be no shots today. First there will be much research (again since data changes) before I consent and create a safe schedule. That's just how this lunatic rolls.
(Afternoon)
Transparency + Predictability = Well Child Visit WIN!
Adam did so well. I told him EVERYTHING the doctor was going to do and I discussed with him everything I was going to talk about with the doctor (vaccinations, anxiety, ADHD, school, stress). I assured him that even if his labs showed that he needed boosters, he would not receive them today. Thankfully, his labs came back with *very* high titers and no vaccinations are needed. There may be a push back from the school but my doctor is on my side on this one and is willing to fight the fight with me. She is also agrees that medicating is not a good idea since medicating for one issue would make the other worse. Recommendations: Healthy diet, exercise, continuing with Behavior Psych. So far today is a WIN
Adam did so well. I told him EVERYTHING the doctor was going to do and I discussed with him everything I was going to talk about with the doctor (vaccinations, anxiety, ADHD, school, stress). I assured him that even if his labs showed that he needed boosters, he would not receive them today. Thankfully, his labs came back with *very* high titers and no vaccinations are needed. There may be a push back from the school but my doctor is on my side on this one and is willing to fight the fight with me. She is also agrees that medicating is not a good idea since medicating for one issue would make the other worse. Recommendations: Healthy diet, exercise, continuing with Behavior Psych. So far today is a WIN
(Evening)
This is so true. (link to a wonderful article about finding acceptance as the parent of a special needs child in a room full of moms of neurotypical kids)
The Invisible Mom
(later evening)
'Cause that's how I roll.
I have the *full* county IEP packet in hand to prep for our middle school placement meeting next week. I also have a half carton of Ben & Jerry's Chocolate Therapy and a container of Carmel sauce. I guess I know how my evening is going to go down.
Tuesday
(middle of the night)
Today I'm wondering... If I gave up a night of sleep and instead cleaned every room that does not contain a sleeping human, would I get caught up? I fear not.
(early evening)
I so very rarely make sweeping statements that start with "my child will never..." There is a guarantee within those words what mean, your child will absolutely... That being said, I hate Kidz Bop with a burning passion and I will do everything in my power to keep it out of my home and car. My take on it is, just listen to the REAL song by the ACTUAL artist! They do play it at school though, so my sons often give me updates on which songs have made it to Kidz Bop stardom. You can imagine how today has gone since my 11 year old learned that Kidz Bop 24 contained a song by his arch nemesis Demi Lovato... Yeah, it's gone about as well as the "music" on Kidz Bop 24 is good (which is to say, BAD!!)
Wednesday
(afternoon)
Online summer school is kicking MY ass. 9 year old really really just doesn't want to do it and constantly gives up. Giving up is my Lunatic Autism Mom red button #1. Never give up. Never ever.
(early evening)
Haircuts this afternoon. It used to be that I would look forward to lazy summer days with nothing planned, now I would kill for just one afternoon without an appointment of some sort. Forget mornings, we NEVER EVER get a morning off.
Thursday
(morning)
Can't walk to ESY today because of the looming threat of thunderstorms in the area. The extra :15 minutes that driving affords feels a little decadent.
(afternoon)
I've officially decided which part of the day I dislike the most! No, it's not morning (although they can really suck some days...). The part of the day I dislike the MOST is the first :15 minutes after we walk in the door and the boys are dumping all their stuff everywhere and I'm barking orders like, "hang up your jacket, put your shoes in the bins" and they are simultaneously asking, "Can I get on the computer? Can I play on wii? Whats for lunch?" and I'm trying to unload the perishable items from the grocery bags and the cat is on the table... Yes, that is the part of the day I hate the most.
(early evening)
I found an extremely interesting Smithsonian online exhibit, part of which is the "Ugly Law" of 1867. Wow.
“Any person who is diseased, maimed, mutilated, or in any way deformed so as to be an unsightly or disgusting object, or an improper person to be allowed in or on the streets, highways, thoroughfares or public places in the City of County of San Francisco, shall not therein or thereon expose himself or herself to public view.” —San Francisco “Ugly Law,” 1867
“Any person who is diseased, maimed, mutilated, or in any way deformed so as to be an unsightly or disgusting object, or an improper person to be allowed in or on the streets, highways, thoroughfares or public places in the City of County of San Francisco, shall not therein or thereon expose himself or herself to public view.” —San Francisco “Ugly Law,” 1867
(late evening)
My alter-ego decided to cop and attitude:
SOON. The county IEP looms, placement is imminent.
I freaking hope so!!! We're running out of summer! I vow to put away my IEP Lunatic Autism Mom photo as soon as this fight is behind us.
Until then we shall remain vigilant!!!
I freaking hope so!!! We're running out of summer! I vow to put away my IEP Lunatic Autism Mom photo as soon as this fight is behind us.
Until then we shall remain vigilant!!!
(very late evening remembering the conversations of the day with my 9 year old)
9 year old: Can you draw a star on my picture?
Me: Sure, where?
9 year old: In the vomit.
Me: Of course.
Me: Sure, where?
9 year old: In the vomit.
Me: Of course.
Another gem from my 9 year old today (riding in the car to Target)...
"Mom, I miss my friend Skylar."
Me: "I know, but summer is almost over and you will see him when school starts."
"He's much smarter than me."
Me: "Skylar is a very smart boy and a nice boy too, but so are you."
"He likes girls. I like boys."
Me: "That might change some day, both boys and girls make excellent friends." *I'm soooo not going into the other meaning of that one!*
"Mom, I miss my friend Skylar."
Me: "I know, but summer is almost over and you will see him when school starts."
"He's much smarter than me."
Me: "Skylar is a very smart boy and a nice boy too, but so are you."
"He likes girls. I like boys."
Me: "That might change some day, both boys and girls make excellent friends." *I'm soooo not going into the other meaning of that one!*
Friday
(morning)
Friday = NeuroBehavioral appointment.
(late morning)
We got a spot for ASkate next Thursday!!!
(afternoon)
Friday confession time: After an NBU appointment first thing this morning (plus the accompanying 1 hr drive each way), lunch with the hubs, a chiropractor appointment for all 3 of us and what should have been (but wasn't) a quick trip to the grocery store for a few items to make french bread pizza tonight... I've put one child on the Playstation and the other on the computer so that I can go upstairs, put on my comfy jammies and zone out for :15 minutes. Lets hope I don't fall asleep because they will totally remain quiet and on screens until the end of time if I let them.
(evening)
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